Sunday, May 13, 2012

Happy Mother's Day!


CaringBridge Update [Click Here]




I'm wishing every Mama's a day filled with pampering and loving hugs. I don't have any children of the two leg kind. My girl has 4 legs and that's my Mother's Day! For the last 3 years, I've been a mom to Shadow our German Shepherd and she's brought so much joy to our lives. Sweet personality and follows us everywhere. She brings something special into our life. Owning a dog is a tremendous responsibility. But, the rewards are many! They cheer us up and provides hours of entertainment. I've never know a dog to catch a tennis ball, speak or jump like she does -- but Shadow can! She provides us with so much joy, things that we need in our life. She knows all about unconditional love and she shows it to us every day.


Wow, quite a long blog for my girl... Well, that's my Mother's Day!

Wednesday, April 11, 2012

Update: August & September 2011

Hi Everyone!
The best gift in the world after being released from the hospital was being outside. Breathing that fresh air and feeling the sun. I knew that these next few months would fly by and I'd find myself readmitted in the hospital for the bone marrow transplant in October. So we lived every single day to it's fullest. We loaded up on activities, family and friends. I was very fortunate, upon my July discharge from the hospital, to be feeling great!


July 31st, 2011 - Our 3rd wedding anniversary!


I surrounded myself with family and friends.

Adam and I were making big time decisions. Where to have my bone marrow transplant. We chose the hospital that could take me the soonest. Just so happens that it was the one closest to my family & friends!
Having the transplant location took a load off our shoulders. We continued filling our days with mostly nature activities. Camping for two weeks was the best! I appreciated the sunny days but also enjoyed the rainy ones.
I went from blonde to brunette. Having brown hair was always something I wanted to try, wearing a wig was an opportunity to switch it up.
The big 2-day transplant consultation. It was becoming more and more real that I was going through this. I was introduced to the transplant team (Doctors, nurses, coordinators, social workers, etc...), visited the bone marrow transplant floor and got a boat load of information.
My brother flew into town for the weekend so the transplant team could do a series of tests.
I continued to have frequent hospital visits; blood work, PFT, Hickman upgrade (2 to 3 tubes), muga scan, bone marrow biopsies, etc... Adam, Shadow and I continued to get out when we could and enjoy each other and our freedom.

We got word on September 20th, 2011 that I continued to be in remission!!!! We could move along with the pre-transplant phase the very next week...!

Thursday, April 5, 2012

Update: June & July 2011

Hello Everyone!!
In my last blog post, which was forever ago, I wrote about the Hickman implant in details. These next few updates won't give as much information. Just an overview of June and July 2011. So here's a pic of the 1st Hickman dressing change. I stayed 41 days in isolation in this room. The positive was that it was bright, sunny and had amazing people care for me!
This is the arrival of my darling brother from Fort Erie Ontario. We found out on July 22nd 2011 that he was a perfect match for my bone marrow transplant. A miracle!!!
Adam went to get this tattoo right before the first bag of chemo. He's my angel!!
Last bag of chemo after the "7+3" induction chemotherapy regimen.
Date night in the hospital isolation room. Thanks Adam, Tracey & Jackie!!!
I meditated every single night. Nurses would walk into my room and I was so deep into it that I wouldn't even hear them. Vitals and meds always came second when I meditated. The nurses were so sweet to return once I was done. To this day, I have continued to practice. Actually, I've brought it to a whole new level.
Thinning of the hair didn't concern me. I kept it this lenght until it was all gone. I chose to see how it fell off my head.
This is the 1st hair wrap that I wore. Of course I added flowers ;)
Time to try on some wigs!! My amazing husband tried some on with me. We had some good laughs...! I love this man so much!
I enjoyed getting visitors!!! Thank you to everyone who came to spend time with moi!
Goodbye hair wraps.... Hello beanie hats!! I found these to be SO comfortable. Thank you Bernice & Judy!!
Shots, Shots, Shots...
You will never believe who came to visit me in the isolation room at the hospital.... My girl SHADOW!!!! That's right. The hospital guard, who went to school with my brother, told Adam that he could get a special permission for Shadow to visit me. They do this, at times, when someone is in the hospital for a long time. Yup, I qualified! Tears to absolute joy!!
Interview with Radio Canada/CBC Television in my room.
A second visit from Shadow. This brought such good energy and excitement! I love my girl.
A picture with my angel husband. He was by my side throughout this whole journey. Ohh, those little ponytails are getting thin hee hee! Did I tell you that I'm in REMISSION here!!!!!
The wall of encouragement and special thoughts. Look at that beautiful sun coming in!
Just got word that I'm getting released today!!! It's been a long 41 days.
It's been a long 41 days of not breathing fresh air..! We are packing up and heading out.
Many, many THANKS for all your support, visits, gifts, thoughts and prayers. Enjoy this beautiful life to the fullest xo

Wednesday, April 4, 2012

I'm baaaack!!

If you haven't read my CaringBridge post, I'm here to tell you that I'm starting up the good ol' blog! I'm really excited and motivated to put these fingers to work.

Today is day +181 post bone marrow transplant. The last time I posted on CaringBridge, I shared my +100 day update. It's been way too long. This afternoon, driving back from the Moffitt Cancer Center in Tampa, I noticed "signs". Not billboards, nor bumper stickers but signs from the universe. I strongly believe they exist. So it was clear to me... I had to start writing again.

I have lots to tell you since the January post. I will not only share my medical updates but plenty more...

Well, have a good night and sleep tight!

Tuesday, July 12, 2011

Just wanted to let you know that CaringBridge has been updated.
Enjoy every single day of your beautiful life!!!

Monday, July 11, 2011

The Hickman Catheter


I awake to the sound of voices outside my hospital room. I know they are coming for me. It's "Hickman Catheter" day. I prop myself out of bed to quickly wash my face. There's enough time to exchange kisses with my husband. I put my mask on and lay in a horizontal position on the stretcher. As the nurse is wheeling me out the door, Adam leans over and squeezes my hand as another sign of affection. I can feel that he is sharing emotions of compassion with me. His strong desire to alleviate my suffering is killing him inside. He stays in the room as I disappear into the hallway.
*
The oncologist had given me precise information about this medical procedure. A tubular, flexible port-a-cath would be inserted and passed through my central venous system for the long-term administration of substances such as high-dose chemotherapy agents, antibiotics, drugs and blood products. I was given two detailed sheets about the Hickman catheter which I chose not to read before the surgery. I had grasped mentally the significance of this implant from my conversation with the doctor. That was sufficient. The recommendation for the presence of double lumen is beneficial for leukemia patients. It allows introduction of fluids via two access points.
*
Once in the operation room, I was switched from the stretcher onto the surgery table. I scanned the room. The medical staff was wearing scrub gowns, gloves, hats and masks. They placed specialized garments on the table; packing gauze, solutions, dressings and a series of instruments. Everything emphasized cleanliness to protect me from intra-operative wound infection. The room quickly became a "scrubbed" environment.
*
The nurse approached the surgery bed and introduced herself. She gave me a brief summary of the procedure. She directed my attention to where the two incisions were going to be while she applied a great degree of pressure at those spots. I listened but thought: "let's get it started". I was ready-to-go with my fingers clutched to my cross. Little did I know the nurse would advise me to remove my necklace. Disappointed by the failure of my hopes to wear it for comfort, I asked her if I could keep it in my hand. She nodded to express her approval. Guarding it tightly in my left hand, I rubbed the stone surface in a back-and-forth motion.
*
*
The day before the implant, Adam went out and got matching chains and pendants. I was moved by all these emotions as tears rolled down my cheeks. These necklaces were perfect and had strong representation for us. It gave me good energy by inspiring me with faith and to always keep a positive attitude. I love my husband's ability to find special meanings through this journey.
*
The nurse completed her explanation and in walked the surgeon in his short sleeve v-necked shirt, drawstring pants, mask and cloth cap. The nurse dressed him into the gown and gloves. He asked if I had any questions before he started and I said no. Then the antiseptic blue drapes went up and blocked my view. I kept a firm hold on the cross which allowed me to meditate and remain calm before being introduced to the anaesthesia provider. Guy explained that the insertion of the Hickman line was going to be done under sedation and that he was going to control the degree of the dose given. His friendliness and professionalism made me feel relaxed and completely at ease. I declared him my bartender and told him to give me a good shot on the sedation scale to make sure I felt no pain. The maintenance of my conscious state was in his hands. Guy said that they would take good care of me. I felt reassured. Then he said: "In goes the sedative drug".
*
The bright operating lights were right in my eyes. I tilted my head to the left to avoid eyestrain. Guy snuck under the steril blue sheet to ask how I was doing. I told him that I wasn't anxious and doing fine. I was tired but was able to co-operate with Guy during the procedure. He kept following up on how I felt. I responded that he was doing a great job.
*
At one point, I remember the surgeon sewing with sutures. Then I realized the procedure was completed. The Hickman line tunneled under my skin. I wasn't sure how I felt about having this intravenous catheter in my body for an undetermined period of time. It was something that I would have to get use to being there. However, I was happy that the procedure was over. The entrance site where my sutures joined my two skin surfaces wouldn't stop bleeding. The nurse applied pressure with a sterile gauze. She realized that one stitch had ripped off. She called the surgeon to come back and add a new stitch. The tissues were joined and a fresh new bandage was applied. Later, I looked at the dressing and all looked better.
*
To be continued...

Sunday, July 3, 2011

Angel Hair






June 8th, 2011 The distance travelled between places of treatment [Florida to Canada] gave me a chance to reflect on my feelings. It was important that I visualize my journey. Once settled in the hospital room, I had clearly defined in my mind a specific task that I wanted to organize as soon as possible. The donation of my hair. The need to contribute was important so I requested some information right away. Shortly after my inquiry, the resource nurse walked into my room. Karine, showing the radiance of pregnancy introduced herself. I instantly picked up on her warm and pleasant personality. Her guidance in resolving this need I had to make sure that my hair went to a foundation had been reassured. I felt empowered to chose the program. I was in control.
*
Later that morning, Karine had gathered specific instructions. I was stirred with curiosity. I had to select from a number of possibilities and guidelines had to be properly followed. The hair donation had to be a minimum of 20cm and secured in ponytails. My consultation was successful. Karine's advice and experience gave me direction. Finally the appropriate choice was made. Emotionally content, I was going to donate my hair to "Angel Hair for Kids ~ A Child's Voice Foundation".
*
Many aspects of "Angel Hair for Kids" satisfied my decision. This program "Where Kid's Come First" provides wigs and hair to children with financial disadvantages at no cost. It takes 10-12 ponytails to make one hair prosthesis. It felt good knowing that I was making a difference.
*
It couldn't come fast enough. I wanted that haircut now. I felt fortunate that I could just ask my mom to cut it and not have to fix an appointment and wait. My mom was a hairdresser about 30 years ago and still had the special touch. I knew she was on her way and it would get done soon. Meanwhile, my mom was at my aunt's house saying "the only thing I don't wanna do is cut Monique's hair". Once my mom arrived and walked into my room, the first words out of my mouth were "Mom, you're cutting my hair today!". She shrugged and then agreed. I hadn't given her much of a chance to debate this. When the task was accomplished, my mom told me what she had said earlier at my aunt's house. I thought it was very big of her to put her fears/feelings aside for me. I glanced at her and said "Thank you.. You were the only person I wanted to do this". I can't imagine how my mother felt. If these were regular circumstances, I would have scheduled an appointment. But I can't explain why I wanted my mother and only my mother to share this with.. I guess I wanted someone I trusted, knew and loved to cut it. Over the next few days, I was going to be faced with several procedures where unfamiliar people were going to perform the task. Therefore, this was a situation where I could pick my expert...and that was my mom!
*
Thank you so much mom for cutting my hair and for giving me that feeling of security. I love you!!
*
To be continued...

Friday, June 24, 2011

A New Course


It's June 7th, 2011, departure day. I was leaving my hospital room... My accommodation during the past few days. It affected me. The staff at the Florida Hospital had been beyond amazing. Their ability to narrow down the illness and diagnose the leukemia in a timely manner [four days] was eminent. The quality of care and being sensitive composed the essence of this medical team. They had the ability to make me feel like I was in great hands. I trusted them.
*
It was a signal of the hand at 4am from nurse Kelly that lowered my spirits. I was acknowledging the parting. Managing to swallow, I still felt that knot in my throat. We were evacuated by the medevac team. I was on a stretcher with Adam by my side. As we turned the corner, on the 7th floor, I noticed something. I'll forever remember two pictures hanging on the wall. They were endearing. The first photo had footsteps in the sand and the second had a beautiful beach view. My thoughts were specific "Once I'm healed, I'd love to find those same pictures". Even if it meant that I'd revisit the 7th floor and take pictures of them. Full of influence, those pictures restored my confidence. Everything was gonna be okay...
*
We got on an elevator. The mask I was wearing covered half of my face and that was disappointing. I wanted to share a smile at my husband. Instead, I vocalized it and said: "I'm smiling at you babe" and winked at him. He winked back as we held hands. I was loaded into the ambulance and off we went to the Daytona Beach airport. On board, I scanned every inch of the vehicle. It was equipped with out of hospital medical instruments to transport sick or injured patients. I was the patient...
*
The doors at the rear of the ambulance opened. I took a first glance at the small medevac aircraft. I remember thinking "all of this for me..?!". Riding in patient-care vehicles all day felt so unfamiliar. Looking up at my husband, I could see the fear in his face and feel the pain in his heart. We weren't at ease at all and had a lot of "out-of-the-ordinary" emotions. A quick change of stretchers, then secured with straps and loaded into the aircraft. It was crewed by two staff members with medical qualifications who provided care, two pilots and my loving Adam. No space to move. The time was 5:30am and the sun was still below the horizon. We started taxiing on the runway and in no time, we were airborn. During the flight, I looked over at my husband. My heart shattered to see that he had buried his face into his pillow to cry. I never wanted nothing more than to comfort him and hold him tight... to relieve all his anxieties.
*
We cleared custom in the air. A call had been dispatched because the response team was waiting for us. "Here we go again", I thought as another patient-carrying ambulance waited to attend and transport us to the Dr. Georges-L.-Dumont University Hospital Centre.
To be continued...